millions-missing-campaignEric Gordon, MD, co-author of the groundbreaking study, “Metabolic features of chronic fatigue syndrome“, recently published in the Proceedings of the National Academy of Sciences, will be speaking at the Millions Missing San Francisco rally as part of the global protest for ME/CFS rights.

The rally will be held:

WHEN: Tuesday, September 27th at 11:00am PT

WHERE: City Hall, Van Ness Avenue steps, 600 block of Van Ness Avenue.

OTHER SPEAKERS INCLUDE: Dr. Ronald W. Davis, PhD, Director of the Stanford Genome Technology Center at Stanford University; and Jose Montoya, Professor of Medicine (Infectious Diseases and Geographic Medicine) at the Stanford University Medical Center.


LOCAL CONTACT: David Bergstrom,


1) Put your shoes on your door step or at the end of your driveway

On September 27tDSCF8431h, take a pair of shoes (or several) and put them on your doorstep, lawn, or driveway. Take a photo and post it on social media#MillionsMissing. Anyone can participate, whether you are a patient or an ally expressing solidarity.

You might pair the shoes with a sign that expresses what the empty shoes mean to you. Some examples: “I cannot walk to the end of my driveway” or “My brother should be here.”

Imagine if thousands of homes around the world put out their shoes in solidarity with the protestors in the streets.

2) Protest on social media

On Sept. 27th, post selfies on social media (Twitter, Facebook, Instagram, etc) – in your bed, home, wheelchair, at work, wherever you live – to help us show online the millions who are missing from the protest. Use the hashtag: #MillionsMissing so that we can aggregate all the photos. In addition, you might use #MEAction #mecfs #pwme

You might also consider typing these slogans or holding your own protest sign (whatever paper is handy!) with a slogan in your photo. Here are a few examples to get started:

  • Missing my life for 22 years because of ME / Missing in action since 1991 because of ME
  • Missing equity in research / Missing adequate medical care
  • Missing a doctor who believes me
  • Missing college / Missing my family / Missing running in the park
  • Missing but no longer silent

And don’t forget to follow us on the #MillionsMissing Instagram and share our stories: help us get the word out! Upload any videos you have to share to the #MEAction YouTube channel.

3) Add the #MillionsMissing filter to your social media profile photo

During the month of September change your profile picture with the #MissingMillions Twibbon.

Screenshot 2016-05-07 15.42.01

4) Be a virtual protest organizer

Promote the hashtag and shoe installation on your social media accounts. Email patients, friends, families, allies who are in the vicinity of the satellite protests.

5) Join the Thunderclap

Help us speak in one, loud voice on September 27th.


6) Sign the petition demanding a suspension of graded exercise trials for ME/CFS

7) If you’re in the US, tweet at your health officials who control the levers on ME/CFS.

Tweet these messages to NIH /CDC / HHS:

Tweet at NIH:
NIH’s ramp-up for ME/CFS is too slow, too small. #MillionsMissing demand $250M in funding for research and clinical trials now. @NIHDirector

Tweet at CDC:
#MillionsMissing demand you remove erroneous information, including CBT and GET, from CDC medical education for ME/CFS NOW. @DrFriedenCDC

Tweet at HHS:
The #MillionsMissing demand HHS provide leadership, oversight and a serious commitment to urgently address ME/CFS. @SecBurwell

Not on Twitter? Phone or call your health officials to make our Demands heard loud and clear.