SISOH is providing the following information as it may be of interest. The study is particularly interested in patients with Mastocytosis or other Mast Cell disorders, as well as other types of chronic illness. We are not affiliated with the study, though we will be interested in the outcome.
DO YOU HAVE A CHRONIC ILLNESS?
Scientists at Stony Brook University are conducting one of the largest, most important research studies ever undertaken to understand people’s experiences with chronic illness.
The knowledge we gain from this study will help scientists and physicians to improve care and develop effective treatments.
This anonymous, online questionnaire welcomes any adult who has a rare or non-rare chronic illness to participate. The questionnaire is voluntary and takes approximately 30 to 60 minutes to complete.
Please click on the link below if you are interested in participating!
Thank you for your contribution to our knowledge about chronic illness!
Jennifer Nicoloro-SantaBarbara, M.S.W., M.A., Project Director and
Marci Lobel, Ph.D., Principal Investigator and Professor of Psychology
Stony Brook University
Approved: May 15, 2017
Expiration Date: May 14, 2018